Beating My Multiple Sclerosis with Systema

[Trevor Robinson]

http://www.youtube.com/watch?v=Pf4a-S4isa0

Pounding My Multiple Sclerosis with "Systema"

Strength courage and Humility, it was a hard journey but the rewards are to be normal again! Thanks to Graham my best Martial friend and Brother, Valerie and Vlad all the Guys here and on face book, and Kwan Lee for his Video (which was a great help!)

Never underestimate Breathing Press-ups squats and sit-ups! They do more than you can imagine

And Prayer that gave me the strength to do it all and yes I may have to do it all again but it will be easier next time.

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Потренируемся !

[Eric Hansen]

Where is the "like" button?

Keep fighting the good fight Trevor. Your attitude is an inspiration.

God bless,
Eric

[Dima Trufanov]

Thanks for sharing and inspiration, Trevor, that's brilliant!

Every June we have a Tour de Farms fundraiser here in Chicago for MS research. 2000+ bicycle enthusiasts (and fanatics) cover a distance from 35 to 175 miles while raising money to support the multiple sclerosis battle.

Thanks to Systema training, 5 years ago I was able to complete my first 100-mile run in a single day.

What you shared showed a totally different realm of possibilities.

Cheers,
Dima
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Go confidently in the direction of your dreams.
- Henry David Thoreau

[Brandon Sommerfeld]

Thats awesome Trevor, I love hearing this. Very motivating and humbling at the same time.

[RobGreen]

Just enough time for a quick and hopefully encouraging reply.

I am too well aware with M.S. - in a previous post - I mentioned working with C.I.D.P. diagnosis of a person I love.
Symptoms in many ways so similar - that only she could tell the doctors to give her a spinal tap for proper diagnosis. (The intelligent mind can find so much on the web). BUT - this is most certainly not about me or she.
****

It is 'about' you.
And those you love or know.
****
I find that Systema understanding of the body human - has helped her do things that surprise her excellent neuro-doctor. That is one of the benefits I got out of this study. - I got a chance to help others.
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You?

Will do 'the work' that has come your way...

And from what little I know about you, Trevor - (always enjoyed your words here - big fan/ >> I fully encourage you to investigate ALL possible and concrete here.

With full support - I dare to mention words you already know from Vlad/Mischa/Val and et.al:

"Try to be a good(normal) person"

Recently - a guy named Dave appeared again here - and his sign off is a wonderful play of no an old - very old warrior quote:
Knocked down seven - get up eight.

And in truth, I have belief that you are really on to something very respectable - and very deep and OH so cool!

No one can do this 'work' but 'you'.

I feel that you will find much support in this oddly far flung family -
I would like to feel your involved in some other sites about M.S. - and there - you must know your coming out of left field.

Do not falter, Trevor.

You must understand that your 'pounding' might just be the knock at someones door...offer this gift your working with - to the M.S. community.

Hells Bells - I know you are, already.
*****
This 'one'...is smiling and encourages you to investigate and give your words to others who - might - just maybe - might need a few words to help them become happier and healthier and more accepting of the life challenges they face.

I look forward to this thread evolving much more...
Hello Larry?

Brad, Dave, Kwan, Brian, Sonny, Dima, Jelly/John,Vlad, >>> and many more.

Please..please...just a few words..here.

Normally - I would say 'sorry' for such an intrusion - but maybe I am too close to the good work Trevor is doing right 'now' - that I can claim a lil bit of grace in asking.

I have to PM someone .NOW!

Keep it up Trevor!

Keep your heart open - and say your prayers.

Me?
I do not pray for much >>>but I stop!



And said a prayer for those I pray for - in my own way.

I have someone to PM..now!
Nothin but love for you, bro.

RobG
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Rob Green
NYC
"OK - so, whats the speed of 'dark'"?

[RobGreen]

double post..sorry
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Rob Green
NYC
"OK - so, whats the speed of 'dark'"?

[Larry Wall]

Trevor,

Sorry to hear about your MS and at the same time congratulations for meeting it head-on with courage and Systema.

I don't know what you're doing on the medical side of things for the MS, but seeing that you're in the UK with their healthcare system I will assume you're also dealing with rationing and long delays from everything I've heard about it.

As you probably know, MS is an autoimmune condition where the immune system misperceives the myelin sheathing of the nerves (myelin sheathing speeds up neural transmission to 200 mph and is critical for certain nerves in the brain and both the central and peripheral nervous systems) as a foreign protein--an antigen--and then attacks it.

The gradual destruction of the myelin sheathing results in what is essentially "short-circuiting" of the nervous system all over the body. Depending on the level of autoimmune disorder, the progression of MS can be rapid or gradual. See http://en.wikipedia.org/wiki/Myelin

The real issue is: what's going on with the immune system that it's beginning to malfunction?

I recently developed a related condition known as Hashimoto's thyroiditis. In my case, my immune system stated treating proteins in my thyroid as foreign proteins and started attacking my thyroid whenever it did its job. Not knowing or understanding what was going on, my T4 thyroid levels dropped like a rock and I developed a number of symptoms. I blew up like a balloon and eventually started having heart palpitations, tachicardia and, I later found out, an enlarged heart. After an episode where I had an uncontrolled heart rate of 155 bpm for seven hours I was finally diagnosed and put on levathyroxin and beta blockers to prevent future heart rate runaways. Finally after a roller coaster four months my palpitations and tachicardia have pretty much subsided and I'm beginning to lose weight as my T4 levels normalize. I'm told by my doc my enlarged heart will shrink back to normal within one or two years.

But what I found fascinating in all this was finding out the role between vitamin D and autoimmune dysfunction.

It turns out my vitamin D levels were in the basement. My endocrinologist put me on 10,000 IU of vitamin D daily to get my levels up. He said the maintenance dose will be 5000 IU's per day.

I also discovered that the immune system can begin to go haywire if you've been on one too many doses of antibiotics, among other things.

It can be complicated and the jury is still out on MS, but one area of promise is the use of vitamin D to re-balance the immune system. As I said, I was flabbergasted to discover my vitamin D levels so low. Another area of some research is celiac disease in the breakdown of the immune system. In my case it turns out I have an allergy to gluten, which is found primarily in wheat but is also in certain other grains. Undiagnosed gluten intolerance (leading to leaky gut syndrome) along with vitamin D deficiency, plus some genetic loading is what led me to develop Hashimoto's. In your case, your genetic loading was for MS. See http://www.naturalnews.com/025791.html as well as http://www.nutritioninstitute.com/Multiple_Sclerosis.html among other sites.

Given the UK healthcare system I don't know if your blood levels can be tested for vitamin D or for wheat/gluten intolerance. If I were you I'd try to have it checked out if at all possible. In any event I would recommend taking at least the maintenance dose of vitamin D-3; in my case I've been taking 10,000 IU's of D-3 now for close to six months and my endocrinologist expects my levels to finally normalize by the end of this month. There's also a probiotic called ThreeLac, which essentially crowds out the rampaging candida bacteria (we need candida in our digestive tracts but too many antibiotics kills the other probiotics in our intestines, leaving the candida to essentially take over). I've been getting my Three Lac at a site called candidasupport.com. Some doctors prescribe Nystatin to kill off the candida before they recommend ThreeLac supplementation or recommend the "candida diet" (fortunately I didn't have to go on that). Additionally, my endocrinologist told me to supplement with selenium (it used to be common in many foods but now that our soil's been depleted with so much commercial farming selenium is hard to come by naturally now). I additionally supplement with Omega 3 fatty acids (via krill oil and by eating sardines and salmon) and also with healthy saturated fat (as is found in avocado and in coconut oil).

Again, while I'm not a doctor and can't say for sure, I can say we've got related issues and maybe what's helping for me can help for you. I'd suggest checking it out.

While you're at it, you might also want to check this out:
http://emf.mercola.com/sites/emf/archive/2010/02/09/new-study-confirms-electrical-pollution-from-cell-phones-and-wifi-is-hazardous.aspx

And HANG IN THERE!!

You're showing great grit and fortitude in your perseverance, what the Finns call sisu.

Keep it up!


.
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"C'mon over to my place before the big game. Bring the kids!" --God

[RobGreen]

Thanks Brother...

I have new stuff to work with with my loved ones.

This is what we were and are and should always be about, here.
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Rob Green
NYC
"OK - so, whats the speed of 'dark'"?

[Trevor Robinson]

Wow guys now I have to do a big Answer! (I will try and keep it brief )

Yes Larry vitamin D3 (actually a hormone the turns genes on and off and makes the immune system “Smart”) is in short supply funnily enough,
75% of all Americans and 95% of all black Americans are deficient in Vitamin D3! The reason in the first case is that for the last 30 years or so we have been told to stay out of the sun! and put on sun block! The sun block stops the UVB that your skin turns into vitamin D3 but lets in the cancer forming agents! In the latter case the dark skinned amongst us have a skin that is set up for living near the equator dark people’s skin filters the UVB out and their body is adapted for a lot of sun light,

the only time you can collect Vit D3 is in mid summer (when you have no shadow) and you need to get on a sun bed for ten minutes at a time but don’t burn.

The lack of this intake of Vit D3 has caused countless deaths and Disease over the last 30 years! Please watch this informative and entertaining video it is 58min of eye opening stuff! http://www.youtube.com/watch?v=Cq1t9WqOD-0&feature=channel

I’ve always been a bit sun shy and it has been to my cost and yours Larry! (you sound like you are getting better) the wiki you posted on MS is now out of date as it is turning out that MS is in fact a cardio vascular disease and a cure is on the way CCSVI (Chronic Cerebrospinal Venous Insufficiency) Coogle viamin D3 and cardiovascular illness, it is all there in your face,

This is A Video I made on CCSVI http://www.youtube.com/watch?v=CdV8LkyTfU8 this explains what ccsvi is and the link between MS and D3 there has been research on MS and Vitamin D3 for over a hundred years but they were looking in the wrong place until a cardiologist looked at it, there are tests being done as we speak in the US and Canada as well as other plaices, I have already had a Doppler scan on the jugular vines and my left one needs more investigation (at it kept disappearing! Off the screen!)

Vitamin D3 is the link as to why MS disappears as you get nearer to the equator and this goes for other linked diseases

Simply the lack of D3 causes cardiovascular problems (in my case strictures or stenosis (narrowing) of the veins, this causes a reflux of blood into the Brain, the reflux leaves Iron deposits in the Brain, the Iron causes the BBB (Blood Brain Barrier) to break down/flair up letting the immune system into the brain the immune system attacks the Myelin in mistake for the Iron and that causes the problems,

Dr Zamboni discovered that if you fix the stenosis with angioplasty (balloons) the blood starts to flow and the Iron goes and the MS stops, end of!

I believe that 37 years of Martial arts and exercise has kept my MS at bay and I have had it for 15 years, but was only dx last may , We have had a series of bad winters and summers in the UK over the last few years I guess my D3 was very low, I’m not on any drugs and I started taking Vitamin D3 a few weeks ago 500iu a day (too low) the three weeks ago 1000iu a day (too low) then 10’000iu last week (too low) then 20’000iu a day last week, (now get it on prescription) and My Doctor has been good but I had too many delays last year! But I’m in the system now!

Some things D3 cures cancer breast colon colds flu and it goes on and on and on watch the video

Exercise got me back and I could go on about it but this post will end up epic!
I feel another video coming on!
Thanks for the support guys it is much appreciated (time for someone else to write!)

I would just like to say the Valerie has been fantastic with her support and I love her to bits for it! Credit where Credit is due

Will write more later!
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Потренируемся !

[Trevor Robinson]

hot off the press from Canada just what I was Talking about!


http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20100208/ms_zamboni_100208/20100208




it's official.! The International Union of Phlebology officially classified CCSVI as a congenital vascular malformation,
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Потренируемся !

[Peter Djordjevich]

I went to my doctor a couple years ago because I kept getting sick with the flu or cold or something. He tested me for Vitamin D and sure enough, my levels were way below normal. Most likely due to my job being a cube jockey for 8-10 hours a day. I've been taking Vitamin D supplements since, and haven't had serious bouts with the flu since. No Flu shots, besides H1N1 a couple weeks ago. Incidentally, I did catch a bad cold last week...
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Behold, u kick me from teh urth; An killz me; An i has no guild er clan ur nothin; an' i'm duumed with everyone, even n00bs will pwnz me. An Ceiling Cat said unto him, therefore whosoevr pwnz cain, i will pwnz him 7x.

[RachelKlingberg]

Thanks for sharing that interesting information. I also take Levoxyl, Larry, though in my case it is hypothyroidism which is not as dangerous as Hashimoto's, as I understand. Still, it would eventually kill me if left untreated. It killed my grandfather, who was too stubborn to take medication. Many people have suggested to me that I shouldn't take drugs for this condition and seek a natural form of treatment. But I can't take that risk. I remember how miserable I was before diagnosis: fat, lethargic, sleeping 12 hours a day, hair falling out, and worst of all, constantly thirsty and drinking at least a gallon of water a day. I could live 'naturally' like that and perhaps make it to 50, or live 'unnaturally' on drugs and have a normal lifespan, like my great-grandmother, who was also hyperthryoidic but took medication for it and died at 91 with all her faculties.

I still see a physician regularly (once or twice a week), for overall wellness and help with chiropractic and weight issues, but except for being too fat (which I blame only partly on hyperthryoidism - I do love to cook), I'm quite healthy, never get sick, have great cholesterol levels, and feel fine. My body temperature is low - 97 F is typical for me. I take 800 IUs of D-3 supplement per day, but reading Larry's post, I wonder if that's enough in the wintertime? In the summer, late spring, and early fall, I'm out and about all the time, walking around the city or sitting at the park or beach for at least an hour a day, although I wear SPF 15 on my face, but my arms and legs are exposed. But in the winter, I'm still out and about, but completely covered up - maybe just my hands and a little bit of neck uncovered if it's not too cold. I wonder if I should take more D-3 in the wintertime?

In an ideal world, I wouldn't need a D-3 supplement but like Peter, my job is indoors and I'm parked at a desk inside for 7 hours a day, with a 1-hour lunch that I spend outside only in moderate weather. In the winter, at most I'll take a 20-minute walk at lunchtime but all bundled up with not much exposure to natural sunlight.

Thanks Larry and Trevor for some interesting information about D-3. I'm going to read up on it.

*Vsego nailuchshego* (best wishes),
Rachel
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There is nothing more deceptive than an obvious fact. - Sherlock Holmes

[John Elliott]

Trevor I'm sorry to hear you have this terrible disease, but as you can see hope is on the horizon. Actually despair is a sin and hope should always be on the horizon, but now the hope is being rewarded with evidence. I tend to agree with your surmise that MA and exercise keep a lot of things at bay.
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aka jellyman, TheTypenator

Matthew 25:31-46

"The easiest way to get hurt is to stand in the middle of the road. " - Furman

[Trevor Robinson]

the sympathetic and the para sympathetic system

http://www.youtube.com/watch?v=2b-anNDLdsA&NR=1&feature=fvwp
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Потренируемся !

[Lester Cohen]

Trevor

I greatly support your battle with MS and how Systema has helped.

I've had Parkinson's Disease for the past ten years and have been involved in Systema for five of those years. The physical aspects of Systema, the mental-cognitive-emotional aspects of Systema training and the emotional and spiritual support of various members of the Systema community are an unbeatable form of "treatment".

Parkinson's is progressive (it will just continue to get worse) and is uncurable, or so modern medicine says. Rather than trying to fight the numerous and pervasive symptoms of Parkinson's, I try to blend my action with those of the disease to redirect what is happening to me. To result in better outcomes than what the disease has in store is my constant goal.

As someone far smarter than me once said "I may have Parkinson's but Parkinson's doesn't have me". From the little I know, many aspects of MS are not dissimilar from Parkinson's. I have been leading support groups for people with Parkinson's for over eight years and have learned much from other people. If there is anyway I can help you travel the path you travel, please let me know.

Lester Cohen